Day 326 - A little bit of Hope ... for the best or for the worst?

“Hope is a belief in a positive outcome related to events and circumstances in one's life. Hope is the feeling that what is wanted can be had or that events will turn out for the best.

Hope was personified in Greek mythology as Elpis. When Pandora opened Pandora’s Box, she let out all the evils except one: hope. Apparently, the Greeks considered hope to be as dangerous as all the world's evils. But without hope to accompany all their troubles, humanity was filled with despair. It was a great relief when Pandora revisited her box and let out hope as well. It may be worthy to note that in the story, hope is represented as weakly leaving the box but is in effect far more potent than any of the major evils.

In 'Human, All Too Human', philosopher Friedrich Nietzsche argued that "Zeus did not want man to throw his life away, no matter how much the other evils might torment him, but rather to go on letting himself be tormented anew. To that end, he gives man hope. In truth, it is the most evil of evils because it prolongs man's torment.”*

*http://en.wikipedia.org/wiki/Hope

Once again, I have been relatively silent for a couple of weeks. I don’t have anything to report. Or should I say I do? I still have a headache. It has oscillated between 3 and 4 so I can’t really complain. I have been keeping myself busy as I have now managed to start working again - it feels great to finally do something I enjoy (with a constant headache nonetheless).

I keep on wondering, though, who I should ‘warn’ about my headache. It’s a hard decision to make especially in a work environment - what if once you tell those you work with they don’t see you in the same light anymore? What if they worry you’ll call off sick the whole time if the strong attacks return? Is it wise to tell your colleagues about it? Probably not?

Who would you tell if you had a constant headache? Would you tell everyone about it so that they could try and understand (although as far as I am concerned no one ever will) what it is like?

I am torn between telling people and keeping it as a secret. It has got to a point where when I earn some money I am happy that I finally have some cash ‘for me and the headache’. The headache has virtually become my child. I need to earn money to keep the headache at bay, as if it were a little person living with me, someone else I need to look after. Acupuncture, supplements, kinesiologist... / Nappies, baby food, clothes... We’re not too far off when it comes to comparing the two.

On the one hand, I feel I want people to know about my headache for a number of reasons; first of all, maybe they know someone who is living or has lived through a similar thing - perhaps they could put me in touch with them and they will give me the ‘solution’? This is where I always feel there’s a bit of hope. A feeling that I have harboured for 11 months. For the best or for the worst? The feeling is always there but it's constantly being poked at with disappointment.

Secondly, I feel that I should tell people so that if at times I am in an irascible mood then they will know why. I always try my best not to let the headache affect my relationship with others but sometimes it is hard. When you think your head is going to explode and someone is talking to you about something you perhaps don’t even want to listen to because they are so boring and you wish nothing else but for them to disappear and for you to slowly sink into the ground, then it’s hard not to be querulous and lose your patience with them (yes, it has happened to me on a number of occasions).

Having said that, other times I would rather people not know about my headache. I don’t want anyone to feel sorry for me and to treat me differently. Why should they?

Since the headache started 11 months ago, when meeting someone new, I have always told myself that they will never know what I am really like as the headache sometimes affects my behaviour; at times it transforms me into someone I am not and I hate it for that. Nonetheless, deep down I know that who I am is really still me and that they should like me whether I have a headache or not. But I can’t avoid thinking about whether I would act differently around them were I not to have a headache.

Day 310 - Probiotics

“Probiotics are bacteria that help maintain the natural balance of organisms (microflora) in the intestines. The normal human digestive tract contains about 400 types of probiotic bacteria that reduce the growth of harmful bacteria and promote a healthy digestive system. The largest group of probiotic bacteria in the intestine is lactic acid bacteria, of which Lactobacillus acidophilus, is the best known.

It has been suggested that probiotics be used to treat problems in the stomach and intestines. But only certain types of bacteria or yeast (called strains) have been shown to work in the digestive tract.

In most circumstances, people use probiotics to prevent diarrhea caused by antibiotics. Antibiotics kill "good" (beneficial) bacteria along with the bacteria that cause illness. A decrease in beneficial bacteria may lead to diarrhea. Taking probiotic supplements (as capsules, powder, or liquid extract) may help replace the lost beneficial bacteria and thus help prevent diarrhea.

A decrease in beneficial bacteria may also lead to development of other infections, such as vaginal yeast and urinary tract infections, and symptoms such as diarrhea from intestinal illnesses.”

*http://www.webmd.com/digestive-disorders/tc/probiotics-topic-overview

Those of you who regularly read my blog will know that I write a new post either when I have explored a new avenue as a possible cause for my headache, or when someone has suggested looking at a specific factor that may be contributing to the pain.

I have now run out of avenues to explore. I have not come across anything else, whether this be through research or by talking to others, that I have not looked at.

I am still clueless.

But I am still taking my supplements, and feel that the probiotics the kinesiologist suggested taking are somewhat alleviating my pain. Having said that, I do not know if it happens to be a coincidence that my headache seems to have been alright for the past couple of weeks or if it is actually better because of the probiotics themselves. I did take them a few months ago and, if I am not mistaken, I did feel better during that time.

My zinc drops that I ordered over three weeks ago have, nonetheless, not arrived thanks to the postal strike. Thank you Royal Mail.

On the low pain days I feel full of life and energy, ready to live the day ahead to the max. One temporarily forgets about the severe pain, and it’s not until it returns that you realize just how bad it is.

The other day somebody told me that - strange as it may sound and difficult as it may be - I have to start to befriend my pain, as this will help me come to terms with it. It may also help me get less worked up about it as the pain itself causes stress. Given that I have no answer and am not able to justify what I am living through, it angers me, thereby making me stressed.

I now have to try and befriend the pain and almost treat it as if it were one of my peers - given that I need to spend all day and all night with it, it’s best if I consider it a friend as opposed to an enemy. I have tried, and it’s not as easy as it sounds, especially when the pain intensifies and all I want to do is bang my head against the wall and tell the headache to stop tormenting me...

Day 299 - Zinc

“Along with calcium and iron, zinc is probably the most important mineral to the human body. Zinc plays a crucial role in growth and cell division where it is required for protein and DNA synthesis, in insulin activity, in the metabolism of the ovaries and testes, and in liver function. It is particularly important for healthy skin and is essential for a healthy immune system and resistance to infection, as it helps with the healing of wounds. As a component of many enzymes, zinc is involved in the metabolism of proteins, carbohydrates, lipids and energy.

Our body contains about 2-3g of zinc. There are no specific storage sites known for zinc and so a regular supply in the diet is required. Zinc is found in all parts of our body, 60% is found in muscle, 30% in bone and about 5% in our skin. Particularly high concentrations are in the prostate gland and semen. Men need more zinc than women because male semen contains 100 times more zinc than is found in the blood. The more sexually active a man the more zinc he will require.

The first signs of zinc deficiency are impairment of taste, a poor immune response and skin problems. Other symptoms of zinc deficiency can include hair loss, diarrhoea, fatigue, delayed wound healing, and decreased growth rate and mental development in infants. It is thought that zinc supplementation can help skin conditions such as acne and eczema, prostate problems, anorexia nervosa, alcoholics and those suffering from trauma or post-surgery.

Zinc is contained in a wide range of foods but the richest sources are meat (lamb in particular), oats, eggs, nuts and oysters. Only 20% of the zinc present in the diet is actually absorbed by the body. Dietary fibre and phytic acid, found in bran, wholegrain cereals, pulses and nuts, inhibit zinc absorption. Phytic acid forms a highly insoluble complex with zinc which the body cannot absorb. Cooking processes can reduce the adverse effects of both phytic acid and dietary fibre on zinc absorption. Baking can destroy over half the phytic acid in wholemeal bread.

Zinc deficiency occurs where a large part of the diet consists of unleavened bread, such as Iran and other Middle East countries. High levels of the toxic mineral cadmium can also prevent zinc absorption because these two minerals compete for absorption. Conversely high levels of zinc in the diet can prevent the absorption of cadmium. Various chemicals added to many processed foods can also reduce zinc absorption eg phosphates, EDTA. Zinc is lost via the faeces, urine, hair, skin, sweat, semen and also menstruation.”*

*http://www.womenrepublic.co.uk/diet_fitness/zinc/
http://www.vegsoc.org/info/zinc.html

I have been off the blogging radar for a few weeks - I have managed to start working again! What excitement at the age of 25. The headache seems to have stabilized itself to about 3 to 4/10 (when standing) which is great. When lying down it continues to be worse, about 6/10.

I have been seeing the kinesiologist on a regular basis, who has been looking at a number of headache causes from cranial faults to vitamin deficiencies. I am now taking zinc supplements. I recently learned that a zinc deficiency can cause, or certainly exacerbate, everything from acne to diabetes. This is because zinc is needed by the body to make insulin (the hormone that regulates glucose levels in the blood), eliminate harmful toxins, and to maintain a healthy immune system.

Yesterday I also went to see one of the top neurologists at Queen’s Square in London, reputedly the place to go when you’ve given up with everyone else. I was surprised the doctor was glad to hear I was not taking any medication; he encouraged me to continue without, given my progress in the past few months.

“There are a number of patients in the ward upstairs who have had a headache for twenty years” he told me. “They have all been on heavy medication for all that time, and you have no idea how much worse their headache is now as a result of that”. He did, however, give me some suggestions as to what to take should the headache get worse again and should I decide to start taking some medicines. It was certainly refreshing to hear a doctor of western medicine encourage me to “see where your natural path takes you”.

He also explained that given my family’s history of migraines, he believes it is perfectly normal to have started suffering from a headache/migraine at my age, in particular given that I am female. He explained that sometimes these bizarre constant headaches go away by themselves, while other times they stay... for a long, long time.

Day 276 - CSF Leaks and Spontaneous Intracranial Hypotension

"Spontaneous Intracranial Hypotension (SIH) is a condition where a patient gets postural headaches due to a leak of the Cerebrospinal Fluid (CSF) in the spinal membrane. What happens is that the leak causes low CSF pressure within the nervous system, and thus causes a constant string of headaches to the patient. The problem with SIH is that it is very hard to diagnose and there is not a great deal of information on why it occurs.

Cerebrospinal Fluid is formed in ventricles of the brain. It moves through the ventricles and leaves the brain at the base, underneath the cerebellum. Then, the fluid moves into the spinal cord and the nerves, and finally returns to the brain. Throughout this time, the CSF is moving through a membrane, called the dura that surrounds the brain and spinal cord. The condition of Intracranial Hypotension (IH) develops when a rupture occurs in the membrane. Thus, the CSF leaks out of the dura, causing a dislocation of the brain downward and "pressure on pain-sensitive structures." IH can develop as a result of brain surgery, spinal surgery, or any major trauma to the head. However, as in the case of SIH, the rupture can sometimes occur spontaneously. In other words, there is no known cause for the rip in the dura. Some doctors speculate that the spontaneous tear is due to the initial weakness of the dura, or a traumatic event that went undetected; however there is not a great deal of information on this subject.

The principal symptom of Spontaneous CSF leaks is headaches. The headaches only occur when the patient is upright, and gradually disappear when the patient is lying down. In most cases, the headaches gradually increase from the moment the patient wakes up in the morning. However, in other cases the headaches are quick and severe. The acuteness of the headaches varies in each case, which affects how quickly the condition is diagnosed. Some of the related symptoms of SIH are a loss of hearing, tinnitus, vertigo, stiffness of the neck, nausea, and even vomiting.

Since the primary symptom of SIH is constant and severe headaches, it is often misdiagnosed. In some cases of SIH, the condition disappears as spontaneously as it appeared. Mild cases can be cured through a general increase in fluids, especially caffeine, and lots of rest. However, more serious cases will require a procedure called the epidural blood patch. This is a procedure where autologous blood is injected into the patient's lumbar spine. The blood travels through the spinal cord, finds the rupture in the dura, and clots the rupture.

Spontaneous Intracranial Hypotension is a very rare type of a Cerebrospinal Fluid leak, but unlike other types, it does not occur due to any specific traumatic event or surgical procedure in the nervous system. Although there is not much information on the possible causes of SIH, it is suspected that an intrinsic weakness of the spinal membrane or an abnormality of the brain structure causes the rare condition."*

*http://serendip.brynmawr.edu/exchange/node/1688#1

For some reason or another, the headache has been behaving itself again as of late (except this morning when I had a bit of a relapse). I am still taking the supplements the kinesiologist advised using; they seem to be working. Along with that, I have been doing acupuncture on a regular basis for the past month or so, and I feel it’s really made a difference.

During one of the acupuncture sessions I felt my hands heat up until they felt as if they were on fire (my circulation is not great, and my hands are always freezing cold - it was such a nice feeling to suddenly have boiling hot hands). During the following session, the same thing happened but to the right half of my back, where one of my kidneys is. Very interesting considering that the Chinese acupuncturist suggested my headache may be related to my kidney. The needles were definitely doing something.

In the meantime I have been trying to figure out why my headache worsens the second I lie down, whether this be during the day or at night. I can lie down for just two minutes at any time and the headache will hurt more than when I am standing. In the mornings, I am often forced out of bed as I know that once I walk around for a few minutes the pain will slightly subside, albeit by no means in its entirety.

A number of people I have come across on the MD Junction forum have suggested looking into CSF leaks. Like many conditions, Spontaneous Intracranial Hypotension has been found to be more common in women than in men. The condition usually develops while the patient is between 40 and 60 years of age (not my case).

Like so many neurological disorders (and indeed disorders in general), little is known as to its primary causes. By what I have read, it would appear that I can rule out SIH as a possible cause for my headache - I don’t belong to the age category, I have not had any major brain injuries, and my headache actually worsens when lying down as opposed to improving, and most certainly never disappears in its entirety. Having said that, everybody is different, and you can just never say never, can you?

I just struggle to believe that after 276 days of constant headache (who would even believe it's possible to have a headache for that long?), I still don't have an answer as to what it is.

Day 260 - Intracranial Hypertension

“In the 1890s, a German physician named Heinrich Quincke coined the term “pseudotumor cerebri” to describe a neurological disorder which he believed had all the symptoms of a brain tumor, but without the presence of an actual tumor. The “false brain tumor” that Quincke identified more than a century ago is known today as idiopathic intracranial hypertension (IIH).

There are two forms of chronic intracranial hypertension: idiopathic intracranial hypertension (IIH), whereby there is no identifiable cause that triggers the raised intracranial pressure, and secondary intracranial hypertension, which, in contrast to IIH, always has an identifiable cause (such as a head trauma, an underlying disease, a reaction to a certain drug). Intracranial hypertension literally means that the pressure of cerebrospinal fluid (CSF) within the skull is too high. “Intracranial” means “within the skull.” “Hypertension” means “high fluid pressure.”

Cerebrospinal fluid is one of three major components inside the skull; the other two are the blood supply that the brain requires to function and the brain itself. Under normal circumstances, these components work together in a delicate balance. Since the skull is made of bone and cannot expand, an increase in the volume of any one component is at the expense of the other two components. For example, if the brain swells and becomes enlarged, it simultaneously compresses blood vessels, causing the sub-arachnoid space to fill with more spinal fluid. This results in an increase in intracranial pressure (i.e. cerebrospinal fluid pressure), as well as a decrease in blood flow.

CSF has several important functions. It cushions the brain within the skull, transports nutrients to brain tissue and carries waste away. CSF is produced at a site within the brain called the choroid plexus, which generates about 400-500 ml. (one pint) of the fluid each day.

Chronic IH can cause both rapid and progressive changes in vision. Vision loss and blindness due to chronic IH are usually related to optic nerve swelling (papilledema), which is caused by high CSF pressure on the nerve and its blood supply. In addition, individuals with this disorder often suffer severe pain. The most common form is a chronic headache, which is generally unresponsive to the most potent pain medication.”*

*http://www.ihrfoundation.org/intracranial/hypertension/info/C16

As I type this post, my headache is surprisingly ‘good’. About 2/10 - excellent news! Hopefully by the end of the post it won’t have increased, given its moody temper.

Lately I have been trying to find out why my headache hurts much more the second I lie down (whether during the day or at night) - so far I have only come across one other person (on a forum) whose headache also worsens when lying down. He doesn’t know why this happens either, but he strongly suggested placing corn bags on my head at night. He explained that he has found some relief from wrapping very cold corn bags around his head, having left the bag in the fridge all day long.

A number of people have told me to look at Intracranial Hypertension, as apparently those who are afflicted with this illness also have a stronger headache when lying down.

Curiously, Intracranial Hypertension was first documented in the sixteenth century by a Dutch explorer, Gerrit de Veer, who identified the toxic effects of polar bear liver on early Artic explorers. Several men in his expedition developed secondary intracranial hypertension (SIH) and nearly died after consuming polar bear liver, which contains lethal levels of Vitamin A. Excessive ingestion of vitamin A is now a recognized SIH cause (no doubt children will be delighted to hear this).

When looking at the possibility of having Idiopathic Intracranial Hypertension, one must:

a) have signs and symptoms of increased intracranial pressure, such as papilledema and headache;
b) have no localizing findings on neurological examination (Localizing findings are findings that point to injury of specific brain areas. For instance, a localizing finding could be the inability to move a certain muscle.);
c) have a normal MRI/CT scan with no evidence of venous obstructive disease;

d) have high intracranial pressure of 250mm/H2O or above on a spinal tap, with no abnormalities of cerebrospinal fluid;

e) be awake and alert;

f) have no other cause of increased intracranial pressure found.

I can safely tick all of these but two (namely d and f, as I have not had either of these examined as yet).

Given that my unmitigated headache still remains a bit of a mystery to all, it could be an idea to also look into this condition. Just the thought of returning to my GP grates me - the fact that I have to re-explain everything from scratch pretty much every time is tedious enough, but more than anything what I find frustrating is that I know that deep down many of these doctors just think that I am a hypochondriac. If only they knew.

Day 254 - Lyme Disease

“Lyme disease is an infection that derives from a tick bite. The disease has a variety of symptoms, including changes affecting the skin, heart, joints and nervous system. It is also known as borrelia or borreliosis.

Lyme disease is caused by an infection from a micro-organism (Borrelia burghdor feri), itself transmitted by a bite from the wood tick, a blood-sucking parasite which normally lives on deer.

The wood tick is found in many areas, particularly in forests where deer are common. A tick will settle anywhere on a human body, but prefers warm, moist and dark places like the crotch or armpits. When the tick has found a suitable place on the body, it sticks in its probe to draw up blood, exposing the host to the risk of infection.

Some patients with Lyme disease feel like they have caught influenza - the symptoms may be:

• drowsiness
• headaches
• mild fever
• joint and muscle pains
• swollen lymph glands
  

Interestingly, the disease only became apparent in 1975 when mothers of a group of children who lived near each other in Lyme, Connecticut, made researchers aware that their children had all been diagnosed with rheumatoid arthritis. This unusual grouping of illness that appeared "rheumatoid" eventually led researchers to the identification of the bacterial cause of the children's condition, what was then called "Lyme disease" in 1982.”*

*http://www.netdoctor.co.uk/diseases/facts/lymedisease.htm *http://www.medicinenet.com/lyme_disease/article.htm

I have managed to find a great online support community, and have across a number of people who have been suffering from New Daily Persistent Headache (NDPH). Although I haven’t officially been diagnosed with the condition, it’s refreshing to see others who understand what it is like to constantly have a headache.

One person with NDPH has been suffering for 18 years. Imagine 18 years with a headache! And me, who thought that over eight months was bad enough. Just the thought is barely conceivable.

I have been in touch with a lady who woke up with a severe headache in July last year which never went away. In March this year she was diagnosed with Lyme Disease and is now trying to spread the word as she is, finally, headache free.

She suggested I look into the condition. Having done some online research, it does not immediately appear that I have the illness as I have no other symptoms, although she told me that a couple of her friends with Lyme only have a constant headache and nothing more; another acquaintance of hers has the typical Lyme tired and constant headache but no other symptoms either.

She sent me a link to this interesting video documentary on Lyme Disease.

Whether I am afflicted with Lyme or not, I am helping her to spread the word as she only managed to find out what her headache was caused by through her constant persistence and desire to get a diagnosis. Once again, another thing to look into.

Day 249 - Parasites

“Parasites are organisms that obtain nourishment and shelter from other organisms. In this association, the parasite derives all the benefits, whereas the host may either be unaffected or suffer harmful consequences, with the development of a parasitic disease.

The parasites responsible for these diseases are called obligate if they can live only in association with a host and facultative if they can live either in a host or independently. Furthermore, the parasites vary widely in size and complexity, from relatively simple unicellular protozoans (eg, amebae) to more complex multicellular organisms (eg, worms, flukes).

Parasitic diseases are distributed worldwide, with a higher prevalence in developing countries, especially in areas with inadequate sanitation. Some of these diseases are restricted to tropical and subtropical regions. Parasitic diseases represent one of the most common types of human infection throughout the world and are still the cause of much human morbidity and mortality.

With the growth of global travel there has been a huge increase in the number of tropical infectious diseases diagnosed in the northern hemisphere. 35% of asymptomatic people returning from travel had parasitic infections (ref: Whitty et al 2000).”*

*http://radiographics.rsna.org/content/25/1/135.full
http://www.thegardenclinic.net/tropical-infections-parasites.php
http://www.thehtd.org/Posttropical.aspx

Given that most alternative therapies have pointed to a problem in the gut/liver, the possibility of there being a parasite still very much exists for me, despite the results of the tropical diseases tests I did in Senegal back in February.

Last week I went to the Tropical Diseases Hospital in London; the doctor was delightful - not your typical doctor who gives you a supercilious look as soon as you ask questions and try and further inquire as to what he is doing. This doctor took the time to explain things to me, expounding upon the various kinds of tropical diseases and parasites that exist, which made all the difference.

Curiously, one of the most common tropical diseases that people are afflicted with is schistosomiasis, where worms grow inside the blood vessels and produce eggs. The most common occurrence of schistosomiasis among travellers is acquired when swimming in Lake Malawi.

According to the doctor, neurological symptoms are usually accompanied by lumps - given that I do not have any, it seems unlikely that I am afflicted by a tropical disease. Having said that, the possibility cannot be ruled out because, as the doctor explained, there are numerous other undetected tropical diseases whose symptoms are not yet certain.

I was given three testers and asked to hand in some samples over three days (pots, spatulas, paper trays.. will spare the details). I am now awaiting the results.

Day 244 - Headache Types

Photograph: Nick Veasy/Getty Images

“We all know what it's like to have a headache. They can turn the best of occasions into a form of torture. Four out of five people get tension headaches. One in seven experience migraines. Headaches cost the economy around £1.5bn a year through lost work days.

Trouble is, while some causes of headaches are obvious – such as when you've had too many glasses of wine the night before – others are more tricky to call. And how can you tell what's serious and what isn't? A good starting point is knowing what type of headache you have.”*

*http://www.guardian.co.uk/lifeandstyle/2009/aug/18/headache-migraine-treatment

As I write this post, I feel like my head is going to split. This morning I came across the Organization for the Understanding of Cluster Headache (OUCH), who I contacted for more information on hemicrania continua and New Daily Persistent Headache (NDPH). It was the first time I have spoken to someone who has heard about these conditions.

The above extract was taken from an article in the Guardian that I recently read. Headaches, therefore, seem to be the most ‘popular’ form of pain, despite the fact that so little is known about them. Vast amounts of research continue to be conducted in this field, but little remains known as to the causes, and indeed how best to cure, these headaches.

What I find curious is that almost all webpages (including that of this article) that talk about headaches categorize these into tension headaches, cluster headaches and migraines. They do not mention any other forms of headache, despite telling us that ‘a good starting point is knowing what type of headache you have’. How can we, if no one tells us about the other types of headache? Some would argue that these conditions are subdivisions of cluster, tension and migraine headaches, but little - if anything, even under the subdivision of these headaches - is mentioned about the lesser known types of headaches such as hemicrania continua and NDPH.

It surely is no coincidence I didn’t come across hemicrania continua or NDPH, because I have spent hours on the internet reading and researching about different types of headache, and indeed even speaking to neurologists about them, both of whom failed to even mention the two conditions!

Although there is not much known about hemicrania continua and NDPH, why are these hardly ever mentioned, in particular on some neurologists’ webpages and in other comprehensive medical journals? Is it because science is nearly embarrassed, should we say, by the little that is known about these two conditions? Would it not help if scientists, and indeed the media, gave them more coverage so that more people can learn about these, thus possibly be diagnosed with them which would, in its turn, enable more studies to be conducted on these conditions?

Day 236 - Agnus Castus

“Agnus castus has been used for thousands of years for its beneficial effect on the female hormonal system. Modern research has confirmed this use, the seeds being used to restore balanced functioning to the female reproductive system.

The berries of this plant have a range of medicinal actions but possibly the most important is its ability to rectify hormonal imbalances caused by an excess of oestrogen and an insufficiency of progesterone. It acts upon the pituitary gland, reducing the production of certain hormones and increasing the production of others, shifting the balance in favour of the gestagens.

Thus it has a wide application of uses in malfunctions of the feminine reproductive system. Some caution is advised since excessive doses can cause a nervous disorder known as formication, which manifests as a sensation of insects crawling over the skin.”*

*http://www.pfaf.org/database/plants.php?Vitex+agnus-castus

Whoever has been stabbing that voodoo doll felt some pity and compassion not only on my birthday itself but also during the week thereafter. The headache was once again at its best, and the timing could not have been any better. Unfortunately, though, it only lasted for less than a week. It has since been up and down, fluctuating between 1/10 to 7/10.

A lot of people have asked me how I cope with having a constant headache - I never really know what to answer because what other options are there but to cope?

The last time I went to see the kinesiologist it appeared that my body had an excess of oestrogen; I have now also started taking agnus castus, a tincture which reduces the production of certain hormones in the body.

Interestingly, some studies claim that the agnus castus berries are considered to be an aphrodisiac, though other reports say that they are anaphrodisiac. The reason for this apparent contradiction is that the berries have a regulating effect on the body and so are likely to increase sexual activity in those who are not very active in this area whilst reducing it in those who are very active.

Although I have not got rid of my headache, I have definitely seen a number of changes over the past few months. There have been times when the headache has been 1/10 which has never happened before. I am hoping this improvement will continue to manifest itself more tangibly until the pain is annihilated in its entirety.

Day 227 - New Daily Persistent Headache (NDPH)

“In the last few years, New Daily Persistent Headache (NDPH) has been recognized as a distinct primary headache syndrome. Primary headache disorders are those for which there is no underlying secondary cause that can be identified.

It is characterized by continuous daily head pain, varying in intensity, and sometimes accompanied by some migrainous symptoms. NDPH is unique, however, in that many patients can tell you the exact date when their headache began.

The diagnostic criteria of NDPH are as follows:

A. Headache for more than 3 months fulfilling criteria B–D
B. Headache is daily and unremitting from onset or from less than 3 days from onset
C. At least two of the following pain characteristics:
1. bilateral location
2. pressing/tightening (non-pulsating) quality
3. mild or moderate intensity
4. not aggravated by routine physical activity such as walking or climbing stairs
D. Both of the following:
1. no more than one of photophobia (increased sensitivity to light), phonophobia (increased sensitivity to sound) or mild nausea
2. neither moderate or severe nausea nor vomiting
E. Not attributed to another disorder

Headache may be unremitting from the moment of onset or very rapidly build up to continuous and unremitting pain. Such onset or rapid development must be clearly recalled and unambiguously described by the patient.

Many doctors consider NDPH to be the most treatment refractory (not responsive to treatment) of headache disorders. Unfortunately, NDPH can be very disabling because it often does not respond to preventive or abortive medications.”*

*http://www.healthcentral.com/migraine/types-of-headaches-41643-5.html

It’s my birthday today. Back in February, when my headache was in its early stages, I once thought to myself ‘I wonder what I will be doing on my birthday - by then I will surely know what has caused the headache’.

So in a way I have been looking forward to this day, not because it is my birthday as such, but because for the past few months I have convinced myself that by August I would definitely know where the problem lies.

When reading about Hemicrania Continua, I also came across another condition called New Daily Persistent Headache (NDPH) which also appears to be similar to what I have.

In 2002, the largest study of New Daily Persistent Headache to date was conducted, based on 56 patients from the Jefferson Headache Center in Philadelphia. For me, the most interesting point from the study was that 82% of patients were able to pinpoint the exact day their headache started.

Given that I remember the exact date of the onset of the headache, and that the symptoms described above are also frightfully similar to what I have, this is certainly also another condition I need to look into. What I appear to be inflicted with is a mixture between Hemicrania Continua and NDPH.