Day 428 - Pain

'We forget very easily what gives us pain.' - Graham Greene

"Pain is a simple enough concept to grasp. You stub your toe, shout, perhaps utter a few expletives, rub it better and it eventually fades. But neuroscientists are realising that pain is much more complex than anyone thought possible, comprising not just physical sensations, but emotional ones too. Pioneering studies are providing insights into why some people experience debilitating chronic pain long after an injury has healed, as well as why some are more prone to pain than others, and why certain people never recover from bereavement.

While most pain goes away as an injury gets better, sometimes it remains for months or even years, long outlasting its original purpose. Chronic physical pain is debilitating and can cause disability, depression and post-traumatic stress disorder. It is also very common.

No one really knows why some people experience chronic pain and others do not, but imaging studies at Northwestern University, Chicago, have found a series of abnormalities in the brains of chronic pain sufferers in which the part linked to decision-making (the prefrontal cortex) is reduced, while an area of the prefrontal cortex linked to emotion is hyperactive. What is known for certain is that the brain changes in those with chronic pain so that they experience pain differently from the way they did before.

We all have a system for suppressing pain when necessary so that we can flee attackers even when injured. Those who suffer from chronic pain appear unable to access this and cannot use distraction as a means of suppressing pain; their brains seem to amplify pain signals rather than inhibit them.

Neuroscience is also revealing a host of similarities between emotional and physical pain. Professor David Alexander, the director of the Aberdeen Centre for Trauma Research, is not surprised about the link between physical and emotional pain. “If you listen to people who are damaged emotionally, they will often translate their pain into physical similes: ‘my head is bursting, my guts are aching', and so on. The parallel is very strong.”*

*http://www.timesonline.co.uk/tol/life_and_style/health/article4397377.ece

As I have mentioned on a number of occasions, the headache has created paradoxical feelings in me - on the one hand, I feel I want people to know about it as it could justify any incongruous behaviour, such as feeling dejected, short tempered or angry at inappropriate times; on the other hand, I don’t want people to know about it as I don’t want them to see me any differently than they would someone else.

But even those who know, after a while, stop asking you how you are, they stop asking about your headache, because they forget. But the awful thing is that I can never forget because the headache is always with me.

It’s odd, though, how easily one forgets about pain - when the headache is at its strongest you are taken aback by the amount of pain it causes because in that intermittent period of time in which the pain was bearable, you forgot how bad it really was.

And in a similar way, people forget, because most of us who have these inexplicable headaches don’t tend to have any other visible symptoms, which naturally leads people to forget about the fact that you’re in constant pain. But we ourselves are incapable of forgetting about our headache, because it never leaves us.

Many people have asked me if I can forget about the pain, but how can you? Sometimes you get distracted for a few minutes and of course you focus on something else, but the pain is always there, always reminding you of its presence. It makes you wonder if another person would be able to cope any better. Would they be able to put up with the pain too? How used to the pain have I got? According to a study mentioned above, the brain changes in those with chronic pain so that they experience pain differently from the way they did before. This makes me question how much (or how little) I feel pain in comparison to others. I sometimes wonder what would happen if someone else lived in my body - how long would they be able to put up with the pain for before handing it back to me and imploring me to take it?

I just cannot imagine what it would be like not to have a headache. I can picture an immediate feeling of lightness. Just imagine! My head always feels so heavy, so burdensome.

Day 400 - Vaccines & Thimerosal

“Vaccines are medications that are designed to stimulate the body's immune system to generate a response that will protect the individual from disease by the pathogen in question. The first vaccination was performed in 1796 by the British physician Edward Jenner who had noticed that dairy maids who had had cowpox infection (Vacca = cow in Latin) did not succumb to the deadly smallpox infection that was claiming many lives at the time. To test his theory, Jenner infected his gardener's son, James Phipps, with cowpox and then weeks later attempted to infect him with the deadly smallpox. Happily, James survived the experience and was protected from infection and thus the practice of vaccination was born.

The body's immune system is comprised of two arms - antibody-mediated immunity and cell-mediated immunity. All vaccines developed in the last 50 years probably protect by stimulating a potent antibody response. However, for pathogens that live within cells of the body, where antibodies can't reach, it is likely that cell-mediated immunity is required for protection. Examples of such pathogens include malaria, TB and HIV. Each of these is a huge global health problem claiming millions of lives each year for which there is no effective vaccine.

Thimerosal, a preservative used in vaccines, contains 49.6 percent mercury by weight and is metabolized or degraded into ethylmercury and thiosalicylate. Mercury, or more precisely, ethylmercury, is the principle agent that kills contaminants. Studies indicate that mercury tends to accumulate in the brains of primates and other animals after they are injected with vaccines.

Mercury poisoning has been linked to cardiovascular disease, autism, seizures, mental retardation, hyperactivity, dyslexia and many other nervous system conditions. That's why the FDA rigorously limits exposure to mercury in foods and drugs. Some common sources of mercury include dental amalgam fillings, various vaccines and certain fish contaminated by polluted ocean waters.”*

*http://www.malaria-vaccines.org.uk/2.shtml
http://www.naturalnews.com/011764_mercury_thimerosal_vaccines.html
http://news.bbc.co.uk/2/hi/health/4472485.stm

Having written a post about heavy metal toxicity and having read more about the relation between mercury and vaccines, I thought I’d share some thoughts with you.

I remember talking to some friends a few months ago when swine flu seemed to be the next epidemic that would wipe out half the world’s population (ah, the media!). I remember saying that I would never dream of taking a swine flu vaccine not only because of the amount of poisonous metals (namely thimerosal) contained in the vaccine itself, but also because the vaccine had never been tested before, and thus the long term effects are unknown.

A few weeks before having that conversation, I had watched a video (you can click on it above) on the 1976 swine flu propaganda. The outbreak was a strain of H1N1 influenza virus and prompted vast mass immunization in the United States, mainly due to the advertising campaigns broadcast on television which propelled most Americans to immediately get a vaccine. As you will be able to see in the video above, the consequences were disastrous.

I find this whole topic fascinating, in particular as no one is ever warned of the possible side effects of having a vaccine. How many of you are ever warned of any possible dangers following your vaccinations? The only thing I have ever been in told is that I may feel a bit dizzy and weak afterwards, but that’s about it. We’re not warned of the possible long term effects these injections may have on us.

As I was doing some research online, I came across a site which explained that a study conducted in 1999 revealed that some infants, due to a genetic or developmental factor, lack the ability to eliminate mercury. Trace amounts of mercury in these infants, when accumulated over several vaccines, could pose a severe health risk.

Because of this some countries (including the UK) have banned the use of thimerosal in some - but not all - vaccines. According to an article I stumbled across on the BBC webpage, only hepatitis B and influenza in the UK programme now contain thimerosal.*

More and more scientists have found links between thimerosal and neurological damage, including higher incidence of measles, mumps and rubella vaccine (MMR) antibodies in autistic children. Surely the link between those developing autism post vaccines is no coincidence? Needless to say, there are plenty of doctors, including the spokeswoman for the Medicines and Healthcare products Regulatory Agency, who believe that “There is strong evidence to show that thimerosal in vaccines does not cause neurodevelopmental problems." There seems to be plenty of evidence that points to the contrary...

Could my headache be linked to metals that my body is finding hard to eliminate? Possibly.

Day 386 - Heavy Metal Toxicity

"Heavy metal toxicity is an excessive build-up of metals in the body. Oftentimes, the vague symptoms produced by heavy metal toxicity are mistakenly misdiagnosed as incurable chronic conditions. The most common heavy metals that humans are exposed to are aluminum, arsenic, cadmium, lead, and mercury.

Heavy metals are found in everyday existence and are frequently hard to avoid entirely. Most people can excrete toxic heavy metals from the body successfully. However, some people—especially those who suffer from chronic conditions—cannot excrete them efficiently enough and a build-up occurs. Recent research also reveals that those who cannot excrete heavy metals efficiently appear to be genetically predisposed to this condition.

When numerous metals are present in the body, they have a “synergistic toxicity.” Dr. Boyd Haley, professor and chair of the chemistry department at the University of Kentucky, performed a study on rats and found that the mortality rate of rats exposed to a small dose of mercury or aluminum killed only 1 rat in 100. However, when the rats were exposed to both mercury and aluminum at the same time, all 100 rats died—a 100% mortality rate.

Heavy metal toxicity can result from either acute or chronic exposure to heavy metals.

Acute exposure can occur as a result of:

- Receiving vaccinations that contain thimerosal (mercury preservative)
- Mishandled metals at a job site
- Chemical and heavy metal spills–even from a broken mercury thermometer

Chronic exposure happens over a period of time, and includes:

- Having mercury amalgams (“silver fillings”) in teeth
- Living in a home built prior to 1978 that has lead-based paint
- Smoking and/or inhaling second-hand smoke
- Eating foods (such as contaminated fish) that contain high levels of heavy metals
- Living near a landfill

- Working in an environment where exposure is prevalent, such as at a dentist’s office where amalgam is used to fill cavities"*

*http://www.jigsawhealth.com/resources/heavy-metal-toxicity

I had a bit of a flare up last week but nothing major (probably about 6/10) but other than that I have been doing well at about 2/10. No complaints. I am also back in the cold dry Russian weather which so far has kept the headache down to a 2/10.

When I returned to Europe in December for a few weeks the headache seemed to fluctuate a bit more and oscillate (randomly, of course) between 2/10 and 5/10 but after a few days it seemed to stabilize at about 2/10.

I went to see the kinesiologist again a few days ago. I appeared to ‘weaken’ to a homeopathic remedy of metals which implies a possible metal toxicity. Incidentally, the nutritionist I saw a few months ago had mentioned the possibility of taking a herbal remedy for metal toxicity as she had told me this could be the cause of my headache.

I ‘tested’ well for Cilantro (Coriandrum Sativum), a plant used in cases of metal toxicity, and I am now taking 20 drops of it three times a day.

The most common form of metal toxicity is via tooth fillings, of which I have none (luckily). But there are, of course, many other causes of metal toxicity such as those mentioned above, the most common of which is by far receiving vaccinations that contain thimerosal, a mercury preservative.

Given that we have all received vaccinations, it is not surprising that there are so many undetected illnesses out there that could originate precisely from injections that most people deem beneficial to their long term health.

Day 365 - The Weather

“The weather has long been suspected of affecting people's health. Cold damp days can mean aching bones and joints for arthritis sufferers and a long hot spell can result in lost workdays for migraine sufferers. There is mounting evidence that certain health problems are aggravated or even brought on by the weather.

Some studies have suggested that migraine sufferers seem to be more susceptible to changes in the weather. Anything from temperature to humidity to barometric pressure can impact migraines. One of the theories suggested as to why weather impacts migraines is related to oxygen levels. Any changes in pressure affect oxygen levels and it is thought that this may be the mechanism by which headaches occur following certain weather patterns. Blood vessels in the head constrict and expand, leading to the throbbing head pain that is characteristic of a migraine.

The specific weather patterns that trigger migraines seem to yield mixed results. Some migraine sufferers find they react to changes in temperature while others find air pressure to strongly impact migraine frequency and severity. Many migraine sufferers also find humidity to be the deciding factor and still others experience headaches prompted by a combination of weather factors.

One study found that high heat and humidity combined with low pressure led to headaches. Intense cold is also a trigger for some migraine sufferers. There is also the suggestion that it is not so much the weather type itself but the change that accounts for headaches. This means that an abrupt change will trigger a migraine rather than a gradual seasonal change. A bright sunny day followed by a cold rainy one could thus prompt a migraine for some people. This is possibly due to an increased sensitivity in the brains of those who suffer from migraines.

The studies show that migraines are more prevalent in locations where warmer air is moving in. Chronic pain sufferers are most affected by changes in temperature, humidity, precipitation and sudden changes in the weather.”

Fast Facts

- Migraines tend to be more prevalent under two types of weather conditions: when the weather becomes more humid and cooler; and during long hot spells.

- Chronic pain sufferers are most affected by changes in temperature, humidity, precipitation and sudden changes in the weather.

- Arthritis acts up with strong atmospheric cooling and is influenced by dampness. Depression is more prevalent in the warm sector of a weather system.

*http://www.ec.gc.ca/EnviroZine/english/issues/15/feature2_e.cfm
http://www.headacheexpert.co.uk/CanTheWeatherCauseHeadaches.html

It is the headache’s first year anniversary today. What can I say? Who would have thought I would still have a headache a year later? Who would even think it possible? I dread to think how long it will go on for. Maybe it will never leave me. I guess the positive thing (if we can call it positive) is that I have learned to live with it - I am really trying not to make it affect my every day life, whether this be in terms of where I work or how long I go out for in the evenings with my friends. After all I am still very young and have a life to live.

I have been based in Russia for work for the past few weeks and the headache has certainly improved. The cold dry climate has helped - I haven’t had any severe attacks, and the headache has been stable at about 2/10 to 3/10 which is perfectly bearable. Obviously not normal but I can put up with it.

When walking around in extreme temperatures (-25C), the cold appears to block the headache, nearly freeze it, shall we say, rendering it numb. The cold air gives the impression it’s cleansing your lungs and even helping the blood circulate in your head. It’s so cold that you can’t feel the pain, until you walk into a building again and you realize the headache never really left you. The possibility of being able to temporarily numb the pain - albeit in extreme temperatures - has made me start to love the cold.

I certainly think the weather has played a part in my well being, although I also believe it’s thanks to the supplements the kinesiologist gave me and that I have now been taking for the past few months.

I returned to London a few days ago and the headache seems to have dropped down to a 4/10-5/10 which leads me to think that the weather has influenced the severity of my headache. Whether this is due to the difference in temperature itself or simply because of the dry air - or a combination of both -, I do not know. On the other hand, it may just be a pure coincidence as the headache has been at its best for the past couple of months, and I may just be having a little bit of a relapse...

Day 326 - A little bit of Hope ... for the best or for the worst?

“Hope is a belief in a positive outcome related to events and circumstances in one's life. Hope is the feeling that what is wanted can be had or that events will turn out for the best.

Hope was personified in Greek mythology as Elpis. When Pandora opened Pandora’s Box, she let out all the evils except one: hope. Apparently, the Greeks considered hope to be as dangerous as all the world's evils. But without hope to accompany all their troubles, humanity was filled with despair. It was a great relief when Pandora revisited her box and let out hope as well. It may be worthy to note that in the story, hope is represented as weakly leaving the box but is in effect far more potent than any of the major evils.

In 'Human, All Too Human', philosopher Friedrich Nietzsche argued that "Zeus did not want man to throw his life away, no matter how much the other evils might torment him, but rather to go on letting himself be tormented anew. To that end, he gives man hope. In truth, it is the most evil of evils because it prolongs man's torment.”*

*http://en.wikipedia.org/wiki/Hope

Once again, I have been relatively silent for a couple of weeks. I don’t have anything to report. Or should I say I do? I still have a headache. It has oscillated between 3 and 4 so I can’t really complain. I have been keeping myself busy as I have now managed to start working again - it feels great to finally do something I enjoy (with a constant headache nonetheless).

I keep on wondering, though, who I should ‘warn’ about my headache. It’s a hard decision to make especially in a work environment - what if once you tell those you work with they don’t see you in the same light anymore? What if they worry you’ll call off sick the whole time if the strong attacks return? Is it wise to tell your colleagues about it? Probably not?

Who would you tell if you had a constant headache? Would you tell everyone about it so that they could try and understand (although as far as I am concerned no one ever will) what it is like?

I am torn between telling people and keeping it as a secret. It has got to a point where when I earn some money I am happy that I finally have some cash ‘for me and the headache’. The headache has virtually become my child. I need to earn money to keep the headache at bay, as if it were a little person living with me, someone else I need to look after. Acupuncture, supplements, kinesiologist... / Nappies, baby food, clothes... We’re not too far off when it comes to comparing the two.

On the one hand, I feel I want people to know about my headache for a number of reasons; first of all, maybe they know someone who is living or has lived through a similar thing - perhaps they could put me in touch with them and they will give me the ‘solution’? This is where I always feel there’s a bit of hope. A feeling that I have harboured for 11 months. For the best or for the worst? The feeling is always there but it's constantly being poked at with disappointment.

Secondly, I feel that I should tell people so that if at times I am in an irascible mood then they will know why. I always try my best not to let the headache affect my relationship with others but sometimes it is hard. When you think your head is going to explode and someone is talking to you about something you perhaps don’t even want to listen to because they are so boring and you wish nothing else but for them to disappear and for you to slowly sink into the ground, then it’s hard not to be querulous and lose your patience with them (yes, it has happened to me on a number of occasions).

Having said that, other times I would rather people not know about my headache. I don’t want anyone to feel sorry for me and to treat me differently. Why should they?

Since the headache started 11 months ago, when meeting someone new, I have always told myself that they will never know what I am really like as the headache sometimes affects my behaviour; at times it transforms me into someone I am not and I hate it for that. Nonetheless, deep down I know that who I am is really still me and that they should like me whether I have a headache or not. But I can’t avoid thinking about whether I would act differently around them were I not to have a headache.

Day 310 - Probiotics

“Probiotics are bacteria that help maintain the natural balance of organisms (microflora) in the intestines. The normal human digestive tract contains about 400 types of probiotic bacteria that reduce the growth of harmful bacteria and promote a healthy digestive system. The largest group of probiotic bacteria in the intestine is lactic acid bacteria, of which Lactobacillus acidophilus, is the best known.

It has been suggested that probiotics be used to treat problems in the stomach and intestines. But only certain types of bacteria or yeast (called strains) have been shown to work in the digestive tract.

In most circumstances, people use probiotics to prevent diarrhea caused by antibiotics. Antibiotics kill "good" (beneficial) bacteria along with the bacteria that cause illness. A decrease in beneficial bacteria may lead to diarrhea. Taking probiotic supplements (as capsules, powder, or liquid extract) may help replace the lost beneficial bacteria and thus help prevent diarrhea.

A decrease in beneficial bacteria may also lead to development of other infections, such as vaginal yeast and urinary tract infections, and symptoms such as diarrhea from intestinal illnesses.”

*http://www.webmd.com/digestive-disorders/tc/probiotics-topic-overview

Those of you who regularly read my blog will know that I write a new post either when I have explored a new avenue as a possible cause for my headache, or when someone has suggested looking at a specific factor that may be contributing to the pain.

I have now run out of avenues to explore. I have not come across anything else, whether this be through research or by talking to others, that I have not looked at.

I am still clueless.

But I am still taking my supplements, and feel that the probiotics the kinesiologist suggested taking are somewhat alleviating my pain. Having said that, I do not know if it happens to be a coincidence that my headache seems to have been alright for the past couple of weeks or if it is actually better because of the probiotics themselves. I did take them a few months ago and, if I am not mistaken, I did feel better during that time.

My zinc drops that I ordered over three weeks ago have, nonetheless, not arrived thanks to the postal strike. Thank you Royal Mail.

On the low pain days I feel full of life and energy, ready to live the day ahead to the max. One temporarily forgets about the severe pain, and it’s not until it returns that you realize just how bad it is.

The other day somebody told me that - strange as it may sound and difficult as it may be - I have to start to befriend my pain, as this will help me come to terms with it. It may also help me get less worked up about it as the pain itself causes stress. Given that I have no answer and am not able to justify what I am living through, it angers me, thereby making me stressed.

I now have to try and befriend the pain and almost treat it as if it were one of my peers - given that I need to spend all day and all night with it, it’s best if I consider it a friend as opposed to an enemy. I have tried, and it’s not as easy as it sounds, especially when the pain intensifies and all I want to do is bang my head against the wall and tell the headache to stop tormenting me...

Day 299 - Zinc

“Along with calcium and iron, zinc is probably the most important mineral to the human body. Zinc plays a crucial role in growth and cell division where it is required for protein and DNA synthesis, in insulin activity, in the metabolism of the ovaries and testes, and in liver function. It is particularly important for healthy skin and is essential for a healthy immune system and resistance to infection, as it helps with the healing of wounds. As a component of many enzymes, zinc is involved in the metabolism of proteins, carbohydrates, lipids and energy.

Our body contains about 2-3g of zinc. There are no specific storage sites known for zinc and so a regular supply in the diet is required. Zinc is found in all parts of our body, 60% is found in muscle, 30% in bone and about 5% in our skin. Particularly high concentrations are in the prostate gland and semen. Men need more zinc than women because male semen contains 100 times more zinc than is found in the blood. The more sexually active a man the more zinc he will require.

The first signs of zinc deficiency are impairment of taste, a poor immune response and skin problems. Other symptoms of zinc deficiency can include hair loss, diarrhoea, fatigue, delayed wound healing, and decreased growth rate and mental development in infants. It is thought that zinc supplementation can help skin conditions such as acne and eczema, prostate problems, anorexia nervosa, alcoholics and those suffering from trauma or post-surgery.

Zinc is contained in a wide range of foods but the richest sources are meat (lamb in particular), oats, eggs, nuts and oysters. Only 20% of the zinc present in the diet is actually absorbed by the body. Dietary fibre and phytic acid, found in bran, wholegrain cereals, pulses and nuts, inhibit zinc absorption. Phytic acid forms a highly insoluble complex with zinc which the body cannot absorb. Cooking processes can reduce the adverse effects of both phytic acid and dietary fibre on zinc absorption. Baking can destroy over half the phytic acid in wholemeal bread.

Zinc deficiency occurs where a large part of the diet consists of unleavened bread, such as Iran and other Middle East countries. High levels of the toxic mineral cadmium can also prevent zinc absorption because these two minerals compete for absorption. Conversely high levels of zinc in the diet can prevent the absorption of cadmium. Various chemicals added to many processed foods can also reduce zinc absorption eg phosphates, EDTA. Zinc is lost via the faeces, urine, hair, skin, sweat, semen and also menstruation.”*

*http://www.womenrepublic.co.uk/diet_fitness/zinc/
http://www.vegsoc.org/info/zinc.html

I have been off the blogging radar for a few weeks - I have managed to start working again! What excitement at the age of 25. The headache seems to have stabilized itself to about 3 to 4/10 (when standing) which is great. When lying down it continues to be worse, about 6/10.

I have been seeing the kinesiologist on a regular basis, who has been looking at a number of headache causes from cranial faults to vitamin deficiencies. I am now taking zinc supplements. I recently learned that a zinc deficiency can cause, or certainly exacerbate, everything from acne to diabetes. This is because zinc is needed by the body to make insulin (the hormone that regulates glucose levels in the blood), eliminate harmful toxins, and to maintain a healthy immune system.

Yesterday I also went to see one of the top neurologists at Queen’s Square in London, reputedly the place to go when you’ve given up with everyone else. I was surprised the doctor was glad to hear I was not taking any medication; he encouraged me to continue without, given my progress in the past few months.

“There are a number of patients in the ward upstairs who have had a headache for twenty years” he told me. “They have all been on heavy medication for all that time, and you have no idea how much worse their headache is now as a result of that”. He did, however, give me some suggestions as to what to take should the headache get worse again and should I decide to start taking some medicines. It was certainly refreshing to hear a doctor of western medicine encourage me to “see where your natural path takes you”.

He also explained that given my family’s history of migraines, he believes it is perfectly normal to have started suffering from a headache/migraine at my age, in particular given that I am female. He explained that sometimes these bizarre constant headaches go away by themselves, while other times they stay... for a long, long time.

Day 276 - CSF Leaks and Spontaneous Intracranial Hypotension

"Spontaneous Intracranial Hypotension (SIH) is a condition where a patient gets postural headaches due to a leak of the Cerebrospinal Fluid (CSF) in the spinal membrane. What happens is that the leak causes low CSF pressure within the nervous system, and thus causes a constant string of headaches to the patient. The problem with SIH is that it is very hard to diagnose and there is not a great deal of information on why it occurs.

Cerebrospinal Fluid is formed in ventricles of the brain. It moves through the ventricles and leaves the brain at the base, underneath the cerebellum. Then, the fluid moves into the spinal cord and the nerves, and finally returns to the brain. Throughout this time, the CSF is moving through a membrane, called the dura that surrounds the brain and spinal cord. The condition of Intracranial Hypotension (IH) develops when a rupture occurs in the membrane. Thus, the CSF leaks out of the dura, causing a dislocation of the brain downward and "pressure on pain-sensitive structures." IH can develop as a result of brain surgery, spinal surgery, or any major trauma to the head. However, as in the case of SIH, the rupture can sometimes occur spontaneously. In other words, there is no known cause for the rip in the dura. Some doctors speculate that the spontaneous tear is due to the initial weakness of the dura, or a traumatic event that went undetected; however there is not a great deal of information on this subject.

The principal symptom of Spontaneous CSF leaks is headaches. The headaches only occur when the patient is upright, and gradually disappear when the patient is lying down. In most cases, the headaches gradually increase from the moment the patient wakes up in the morning. However, in other cases the headaches are quick and severe. The acuteness of the headaches varies in each case, which affects how quickly the condition is diagnosed. Some of the related symptoms of SIH are a loss of hearing, tinnitus, vertigo, stiffness of the neck, nausea, and even vomiting.

Since the primary symptom of SIH is constant and severe headaches, it is often misdiagnosed. In some cases of SIH, the condition disappears as spontaneously as it appeared. Mild cases can be cured through a general increase in fluids, especially caffeine, and lots of rest. However, more serious cases will require a procedure called the epidural blood patch. This is a procedure where autologous blood is injected into the patient's lumbar spine. The blood travels through the spinal cord, finds the rupture in the dura, and clots the rupture.

Spontaneous Intracranial Hypotension is a very rare type of a Cerebrospinal Fluid leak, but unlike other types, it does not occur due to any specific traumatic event or surgical procedure in the nervous system. Although there is not much information on the possible causes of SIH, it is suspected that an intrinsic weakness of the spinal membrane or an abnormality of the brain structure causes the rare condition."*

*http://serendip.brynmawr.edu/exchange/node/1688#1

For some reason or another, the headache has been behaving itself again as of late (except this morning when I had a bit of a relapse). I am still taking the supplements the kinesiologist advised using; they seem to be working. Along with that, I have been doing acupuncture on a regular basis for the past month or so, and I feel it’s really made a difference.

During one of the acupuncture sessions I felt my hands heat up until they felt as if they were on fire (my circulation is not great, and my hands are always freezing cold - it was such a nice feeling to suddenly have boiling hot hands). During the following session, the same thing happened but to the right half of my back, where one of my kidneys is. Very interesting considering that the Chinese acupuncturist suggested my headache may be related to my kidney. The needles were definitely doing something.

In the meantime I have been trying to figure out why my headache worsens the second I lie down, whether this be during the day or at night. I can lie down for just two minutes at any time and the headache will hurt more than when I am standing. In the mornings, I am often forced out of bed as I know that once I walk around for a few minutes the pain will slightly subside, albeit by no means in its entirety.

A number of people I have come across on the MD Junction forum have suggested looking into CSF leaks. Like many conditions, Spontaneous Intracranial Hypotension has been found to be more common in women than in men. The condition usually develops while the patient is between 40 and 60 years of age (not my case).

Like so many neurological disorders (and indeed disorders in general), little is known as to its primary causes. By what I have read, it would appear that I can rule out SIH as a possible cause for my headache - I don’t belong to the age category, I have not had any major brain injuries, and my headache actually worsens when lying down as opposed to improving, and most certainly never disappears in its entirety. Having said that, everybody is different, and you can just never say never, can you?

I just struggle to believe that after 276 days of constant headache (who would even believe it's possible to have a headache for that long?), I still don't have an answer as to what it is.

Day 260 - Intracranial Hypertension

“In the 1890s, a German physician named Heinrich Quincke coined the term “pseudotumor cerebri” to describe a neurological disorder which he believed had all the symptoms of a brain tumor, but without the presence of an actual tumor. The “false brain tumor” that Quincke identified more than a century ago is known today as idiopathic intracranial hypertension (IIH).

There are two forms of chronic intracranial hypertension: idiopathic intracranial hypertension (IIH), whereby there is no identifiable cause that triggers the raised intracranial pressure, and secondary intracranial hypertension, which, in contrast to IIH, always has an identifiable cause (such as a head trauma, an underlying disease, a reaction to a certain drug). Intracranial hypertension literally means that the pressure of cerebrospinal fluid (CSF) within the skull is too high. “Intracranial” means “within the skull.” “Hypertension” means “high fluid pressure.”

Cerebrospinal fluid is one of three major components inside the skull; the other two are the blood supply that the brain requires to function and the brain itself. Under normal circumstances, these components work together in a delicate balance. Since the skull is made of bone and cannot expand, an increase in the volume of any one component is at the expense of the other two components. For example, if the brain swells and becomes enlarged, it simultaneously compresses blood vessels, causing the sub-arachnoid space to fill with more spinal fluid. This results in an increase in intracranial pressure (i.e. cerebrospinal fluid pressure), as well as a decrease in blood flow.

CSF has several important functions. It cushions the brain within the skull, transports nutrients to brain tissue and carries waste away. CSF is produced at a site within the brain called the choroid plexus, which generates about 400-500 ml. (one pint) of the fluid each day.

Chronic IH can cause both rapid and progressive changes in vision. Vision loss and blindness due to chronic IH are usually related to optic nerve swelling (papilledema), which is caused by high CSF pressure on the nerve and its blood supply. In addition, individuals with this disorder often suffer severe pain. The most common form is a chronic headache, which is generally unresponsive to the most potent pain medication.”*

*http://www.ihrfoundation.org/intracranial/hypertension/info/C16

As I type this post, my headache is surprisingly ‘good’. About 2/10 - excellent news! Hopefully by the end of the post it won’t have increased, given its moody temper.

Lately I have been trying to find out why my headache hurts much more the second I lie down (whether during the day or at night) - so far I have only come across one other person (on a forum) whose headache also worsens when lying down. He doesn’t know why this happens either, but he strongly suggested placing corn bags on my head at night. He explained that he has found some relief from wrapping very cold corn bags around his head, having left the bag in the fridge all day long.

A number of people have told me to look at Intracranial Hypertension, as apparently those who are afflicted with this illness also have a stronger headache when lying down.

Curiously, Intracranial Hypertension was first documented in the sixteenth century by a Dutch explorer, Gerrit de Veer, who identified the toxic effects of polar bear liver on early Artic explorers. Several men in his expedition developed secondary intracranial hypertension (SIH) and nearly died after consuming polar bear liver, which contains lethal levels of Vitamin A. Excessive ingestion of vitamin A is now a recognized SIH cause (no doubt children will be delighted to hear this).

When looking at the possibility of having Idiopathic Intracranial Hypertension, one must:

a) have signs and symptoms of increased intracranial pressure, such as papilledema and headache;
b) have no localizing findings on neurological examination (Localizing findings are findings that point to injury of specific brain areas. For instance, a localizing finding could be the inability to move a certain muscle.);
c) have a normal MRI/CT scan with no evidence of venous obstructive disease;

d) have high intracranial pressure of 250mm/H2O or above on a spinal tap, with no abnormalities of cerebrospinal fluid;

e) be awake and alert;

f) have no other cause of increased intracranial pressure found.

I can safely tick all of these but two (namely d and f, as I have not had either of these examined as yet).

Given that my unmitigated headache still remains a bit of a mystery to all, it could be an idea to also look into this condition. Just the thought of returning to my GP grates me - the fact that I have to re-explain everything from scratch pretty much every time is tedious enough, but more than anything what I find frustrating is that I know that deep down many of these doctors just think that I am a hypochondriac. If only they knew.

Day 254 - Lyme Disease

“Lyme disease is an infection that derives from a tick bite. The disease has a variety of symptoms, including changes affecting the skin, heart, joints and nervous system. It is also known as borrelia or borreliosis.

Lyme disease is caused by an infection from a micro-organism (Borrelia burghdor feri), itself transmitted by a bite from the wood tick, a blood-sucking parasite which normally lives on deer.

The wood tick is found in many areas, particularly in forests where deer are common. A tick will settle anywhere on a human body, but prefers warm, moist and dark places like the crotch or armpits. When the tick has found a suitable place on the body, it sticks in its probe to draw up blood, exposing the host to the risk of infection.

Some patients with Lyme disease feel like they have caught influenza - the symptoms may be:

• drowsiness
• headaches
• mild fever
• joint and muscle pains
• swollen lymph glands
  

Interestingly, the disease only became apparent in 1975 when mothers of a group of children who lived near each other in Lyme, Connecticut, made researchers aware that their children had all been diagnosed with rheumatoid arthritis. This unusual grouping of illness that appeared "rheumatoid" eventually led researchers to the identification of the bacterial cause of the children's condition, what was then called "Lyme disease" in 1982.”*

*http://www.netdoctor.co.uk/diseases/facts/lymedisease.htm *http://www.medicinenet.com/lyme_disease/article.htm

I have managed to find a great online support community, and have across a number of people who have been suffering from New Daily Persistent Headache (NDPH). Although I haven’t officially been diagnosed with the condition, it’s refreshing to see others who understand what it is like to constantly have a headache.

One person with NDPH has been suffering for 18 years. Imagine 18 years with a headache! And me, who thought that over eight months was bad enough. Just the thought is barely conceivable.

I have been in touch with a lady who woke up with a severe headache in July last year which never went away. In March this year she was diagnosed with Lyme Disease and is now trying to spread the word as she is, finally, headache free.

She suggested I look into the condition. Having done some online research, it does not immediately appear that I have the illness as I have no other symptoms, although she told me that a couple of her friends with Lyme only have a constant headache and nothing more; another acquaintance of hers has the typical Lyme tired and constant headache but no other symptoms either.

She sent me a link to this interesting video documentary on Lyme Disease.

Whether I am afflicted with Lyme or not, I am helping her to spread the word as she only managed to find out what her headache was caused by through her constant persistence and desire to get a diagnosis. Once again, another thing to look into.