tag:blogger.com,1999:blog-1861777360544475411.post6284684631295506256..comments2023-09-27T16:44:05.924+01:00Comments on Permanent Headache: Day 500 - Occipital NeuralgiaUnknownnoreply@blogger.comBlogger80125tag:blogger.com,1999:blog-1861777360544475411.post-8638098554522822632017-09-07T05:41:55.126+01:002017-09-07T05:41:55.126+01:00Check out MUSES syndrome - could be endogenous CO ...Check out MUSES syndrome - could be endogenous CO poisoning from trauma creating some of your symptoms (treatment is oxygen therapy)Anisa Abroadhttps://www.blogger.com/profile/17638883026462796093noreply@blogger.comtag:blogger.com,1999:blog-1861777360544475411.post-19827219899705709272017-02-11T03:11:33.258+00:002017-02-11T03:11:33.258+00:00Hello there, not sure how active this blog is but ...Hello there, not sure how active this blog is but so many of these stories sound very familiar. I was first diagnosed with migraines when I was 10, so when my headaches change my GP brushed it off as just another headache, but I knew it was not. No sensitivity to light or sound, motion sensitive with pain that hits so hard and fast within 10 minutes I can go from being on the ground desperately trying to remind myself to breath and then moments later I'm just fine.<br />Giuseppe Lowehttps://yoursoftball.com/top-5-best-slowpitch-softball-bats/noreply@blogger.comtag:blogger.com,1999:blog-1861777360544475411.post-38850037032755327102016-11-01T01:54:18.805+00:002016-11-01T01:54:18.805+00:00Hello there, not sure how active this blog is but ...Hello there, not sure how active this blog is but so many of these stories sound very familiar. I was first diagnosed with migraines when I was 10, so when my headaches change my GP brushed it off as just another headache, but I knew it was not. No sensitivity to light or sound, motion sensitive with pain that hits so hard and fast within 10 minutes I can go from being on the ground desperately trying to remind myself to breath and then moments later I'm just fine.<br />In 7 years I've been through multiple doctors. My current neurologist has me on 70mg of amitriptyline which has at least helped me return to a functioning member of society, but I still have episodes.<br />After "googling" my symptoms I came across the occipital nerve issues and requested physical therapy. After a month I learned a lot and definitely believe my pain is nerve based and not a vascular migraine at all, but I'm still at a loss what caused the problem and how to heal it. I'm concerned the medicine is only covering up a problem. I also work with chiropractors and massage therapist but am still actively looking for a true answer. I feel crazy every time I try to explain how I feel to a doctor. But I'm not willing to accept a life like this and am determined to find an answer.Anonymoushttps://www.blogger.com/profile/10852369632498316842noreply@blogger.comtag:blogger.com,1999:blog-1861777360544475411.post-54621738410465262352016-10-12T13:39:06.575+01:002016-10-12T13:39:06.575+01:00I empathize. I have been fighting headaches every ...I empathize. I have been fighting headaches every days since AN surgery 2 yrs.anyway the ear,side of head and base of skull are making me think it's ON. Anyway wish you reliefMatt Waynehttps://www.blogger.com/profile/11537130819353915278noreply@blogger.comtag:blogger.com,1999:blog-1861777360544475411.post-73110598327081674962016-04-09T23:18:00.856+01:002016-04-09T23:18:00.856+01:00Hi there. I have had a 24/7 horrid headache (and ...Hi there. I have had a 24/7 horrid headache (and my right eye and cheek droop now a little) since 10/1/1995 due to a whiplash type injury. After over 20 years, and having tried EVERYTHING known to man...over 100 doctors, healers, etc., I just gave notice that I'm quitting my job that doesn't allow medical marijuana so that I can go on cannabis. I am totally out of options and can't live like this anymore. Google occipital neuralgia and medical cannabis and you'll read some positive reports. Best of luck to you...Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1861777360544475411.post-3333579755162592802015-10-16T21:26:13.593+01:002015-10-16T21:26:13.593+01:00I suffered a work injury in June of 2014 when my s...I suffered a work injury in June of 2014 when my supervisor dropped a 300-400lb swamp cooler (kinda like ac but bigger) on my head. To start.. my employer is self insured so they have a company that covers all workers comp claims. And up until about 2 months ago ( August 2015 ) i been fighting with them for help. <br />Now, after moving clear across the US, i finally have a Dr that dont put up with their attitude. And is work with my attorney to get me better.<br />My problems exceed just headaches. I have a constant pain from about the middle of my neck up the back of my head to the top of my head. This feels like an electrified ice pick . Though its non stop, the intensity ranges from a 7-9. With medication it will range from 6-8. <br />I also have pain in my right arm, can barely lift 2lbs, have trouble walking, severe sensitivity to light and sound, dizziness, fatigue, extreme depression and shaking.<br />Keep in mind, with all of this i continued to work ( Home Depot ) up to a year after injury and taking up to 8 prescription 800mg Ibuprofen a day just to get through a shift. <br />Wasn't until i moved, and got my new Dr that he said i should have been put on leave a long time ago, which i have been on since June 2015. <br />I am currently undergoing physical therapy but no relief as of yet but only 6 sessions in. Dr thinks it will take months of therapy before i do.<br />I am sorry for all of those who go through this and hope things get bette for you. But it is nice to know there are people out there that feel as i do and have a sense of what we endure. <br />If anyone suffers from this or similar conditions and need an understanding ear, feel free to email me at Hellbilly4788@gmail.com. Anonymoushttps://www.blogger.com/profile/07940782897045145829noreply@blogger.comtag:blogger.com,1999:blog-1861777360544475411.post-79682342499269781802015-10-16T21:25:49.784+01:002015-10-16T21:25:49.784+01:00I suffered a work injury in June of 2014 when my s...I suffered a work injury in June of 2014 when my supervisor dropped a 300-400lb swamp cooler (kinda like ac but bigger) on my head. To start.. my employer is self insured so they have a company that covers all workers comp claims. And up until about 2 months ago ( August 2015 ) i been fighting with them for help. <br />Now, after moving clear across the US, i finally have a Dr that dont put up with their attitude. And is work with my attorney to get me better.<br />My problems exceed just headaches. I have a constant pain from about the middle of my neck up the back of my head to the top of my head. This feels like an electrified ice pick . Though its non stop, the intensity ranges from a 7-9. With medication it will range from 6-8. <br />I also have pain in my right arm, can barely lift 2lbs, have trouble walking, severe sensitivity to light and sound, dizziness, fatigue, extreme depression and shaking.<br />Keep in mind, with all of this i continued to work ( Home Depot ) up to a year after injury and taking up to 8 prescription 800mg Ibuprofen a day just to get through a shift. <br />Wasn't until i moved, and got my new Dr that he said i should have been put on leave a long time ago, which i have been on since June 2015. <br />I am currently undergoing physical therapy but no relief as of yet but only 6 sessions in. Dr thinks it will take months of therapy before i do.<br />I am sorry for all of those who go through this and hope things get bette for you. But it is nice to know there are people out there that feel as i do and have a sense of what we endure. <br />If anyone suffers from this or similar conditions and need an understanding ear, feel free to email me at Hellbilly4788@gmail.com. Anonymoushttps://www.blogger.com/profile/07940782897045145829noreply@blogger.comtag:blogger.com,1999:blog-1861777360544475411.post-16307965633990148372015-05-31T00:39:21.544+01:002015-05-31T00:39:21.544+01:00I was diagnosed with occipital neuralgia in 2010 a...I was diagnosed with occipital neuralgia in 2010 and also borderline chiari malformation type 2. I started getting headaches in 2009 weekly and by the beginning of 2010 they were daily and so extremely painful. It is so hard to concentrate at work when you are fighting the pain as you all well know. I used to be quite active and now its all I can do to go and take a walk. I have tried approximately 21 different medications with terrible side effects. Topomax and neurontin made my hair fall out and the others made me spacey and my limbs felt asleep. I am currently taking 100 mg of tramadol 3 times a day starting at 5 am and percocette at 5 pm and 9 pm. This barely touches the neadaches/nerve pain but it seems to help a little. When I get a 9 or 10 headache and I feel that I need to go to the ER I take Naratriptan 2.5 mg and then another 2.5 mg 4 hrs later if it helps a little. It doesn't make you as drowsy as Maxalt. I am about going crazy. I was hoping to get surgery for the chiari malformation but Dr. Ellenbogen at Harborview in Seattle said I am not a canditate for surgery. I just want some relief. Ihave had Cervical Facet Blocks, Cervical Radiofrequency Neurotomy, Left Atlanto-Axial Joint Block Injection, Facet Joint Block, Left Third Occipital & C3, C4 & C5 Medial Branch Block and Neurotomy. The Lidocaaine Injection and Steroid Injections seem to help for about 8 days. I am now going to a physical therapist twice a week whom is very intuitive and also an osteopath which does cranial manipulation and also acupuncture. I just started hyperbaric oxygen therapy two weeks ago and it seems like the pressure and heaviness that I have in the back of the base of my skull and neck is feeling a little better. I get a 2nd round of Botox on 6/2/15 and I am hoping it helps. The first round did not help at all. My Dr. prescribed the spinal stimulator but the insurance company denied it. I am going to try and go that route again. If anyone has any luck with anything else please let me know. I hope everyone gets this figured out and gets some relief. Take care and good luck to all of you.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1861777360544475411.post-35486951109980821092015-03-06T19:08:50.399+00:002015-03-06T19:08:50.399+00:00I too had both TMJ and ON. I found that when I wen...I too had both TMJ and ON. I found that when I went to a TMJ specialist he made me a custom mouth guard to wear as much as possible. I wore it when I got home from work, through the night up until I went to work. ( I could not talk with it in but if you have a job that does not require constant talking try to put it in at work). I wore that thing for 6 months and my TMJ went away. I still have the ON but at least my mouth feels better. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1861777360544475411.post-90053392362613870302015-01-08T14:50:24.845+00:002015-01-08T14:50:24.845+00:00I would recommend two things, but first let me say...I would recommend two things, but first let me say how my problem is. I have had a constant headache for about 5 years. It starts near my jaw joint, where the trigeminal nerve cluster is. it often feels like a vice grip on my head, and it grows into a bad headache in the top of my head, jaw, and eyes. It is I think a case of occipital neuralgia. Tow things work for it - magic myshrooms (psylocibin) - which are like magic, they take the pain away altogether for 12 hours. The second thing is applied kinesiology, with gentle and taargeted massage of the spine (C1 joint in particular), and other massage. Good luck to anyone suffering - I have just found hope that I can be cured, from my applied kinesiologist, who is a genius. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1861777360544475411.post-76894585299770543862014-08-15T14:54:05.079+01:002014-08-15T14:54:05.079+01:00What name is on your strain of cannabis do you use...What name is on your strain of cannabis do you use for your occipital Neuraliga, I know you said Sativa what brand, I had a car crash, Whiplash injury and have been suffering for 3 years, i cant take pain killers no more allergic had 2 nerve blocks done but still no joy.. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1861777360544475411.post-56803996050173712042014-05-20T21:52:01.154+01:002014-05-20T21:52:01.154+01:00Does the osteopathy help? I have been diagnosed wi...Does the osteopathy help? I have been diagnosed with mayofacial pain syndrome, trigeminal and occipital neuralgia. I am entering my third month off work because of these things. I can understand people wanting to cut the back of their head off. I have said it many times. I describe the pain as feeling like I've been hit in the head with baseball bat. I'm considering osteopathy but, I'm terrified it will make my pain worse. Anonymoushttps://www.blogger.com/profile/17925239225807499311noreply@blogger.comtag:blogger.com,1999:blog-1861777360544475411.post-70109818617477842472014-03-01T18:21:35.115+00:002014-03-01T18:21:35.115+00:00My daughter is 14 and has had migraine pain for 3 ...My daughter is 14 and has had migraine pain for 3 years now. We have narrowed it down to ON and is scheduled for a pain block next week. Please tell me how your daughter is doing with the ablation as my daughter may have to go down that road as well.Karla OGradyhttps://www.blogger.com/profile/02317348359468334858noreply@blogger.comtag:blogger.com,1999:blog-1861777360544475411.post-90801494421175565402014-01-17T10:45:50.155+00:002014-01-17T10:45:50.155+00:00Lim sorry, but I know how you feel. I too have had...Lim sorry, but I know how you feel. I too have had numerous facet injections, a radio frequency ablation, nerve blocks, as well as the implantation of the nerve stimulator and Botox. I feel like I'm losing my mind, nothing seems to work, the headache is so bad 24/7 I no longer work or have a life. I just want my life back..Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1861777360544475411.post-15195327878571002272014-01-17T10:27:39.587+00:002014-01-17T10:27:39.587+00:00Where do you live, can't find a doc to prescri...Where do you live, can't find a doc to prescribe anything hereAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1861777360544475411.post-73707019925764952662014-01-17T10:21:40.131+00:002014-01-17T10:21:40.131+00:00Please do more research on the decompression surge...Please do more research on the decompression surgery . My insurance company refused to pay because they deemed it not safe and too new with not enough research. My docs agreed and recommend the nerve stimulator, which for mw did not work. Good luckAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1861777360544475411.post-19004829252962004042014-01-17T10:14:05.490+00:002014-01-17T10:14:05.490+00:00I had nerve stimulator for more than one year of t...I had nerve stimulator for more than one year of trying to get it right. Finally had it removed. Have had this headache since I woke from surgery 3/27/2007 day and night 24/7 and can't find a doc to prescribe medsAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1861777360544475411.post-27711139401363549882013-11-17T12:07:57.342+00:002013-11-17T12:07:57.342+00:00Hi everybody, I got ride of my occipital neuralgi...Hi everybody, I got ride of my occipital neuralgia in 5 and a half months..did the Mackenzie neck exercise for 2 months twice a week with a physicand did every 2 hoursrecommended exercises and got an atlas orthogonal treatment ..3 days 16 adjustments and took off 2 weeks from physio besides one week trip ..so 4 and resuming physio which goes again technique but doing it for strength and flexibility...a bit of discomfort behind right eye...doesn't usually happen to people with this chiro method..thinking it will go away otherwise good. good luck everybodyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1861777360544475411.post-55932158252660010012013-11-14T22:38:15.140+00:002013-11-14T22:38:15.140+00:00Hi paul, This is exactly what I have! Occipital Ne...Hi paul, This is exactly what I have! Occipital Neuralgia, Cervicogenic headache.. the headache with no real name or description. I had a car crash 12 years ago, didnt notice much, but broke by C7. 6 years ago, i started getting headaches i tried amitriptyline, couldnt handle it with work to doppy, 4 years on i try nortriptyline, it gets worse, 2 years ago i get on the nice cocktails that try you on, pregabalin and topiramate seem to work the best, but the neuropathic pain is constant, and the pain in the spine and the muscular pain caused by all the misfiring nerves cause my shoulder muscle to constrict and my throat so tense drives me suicidal.i get so angry and sore, sometime violent, ive driven rifts with most of my friends and my family, spend all my time in my room and am currently on sick leave. my doctor is thinking of one of these electronic implants. i used to have a great career and fun life.... <br /><br />recent update.. ive combined GABAPENTIN, PREGABALIN and TOPIRAMATE.. i must admit im fairly dopped up, but the pain reduction is the best its been. ill keep updates.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1861777360544475411.post-81304148229655037542013-11-14T01:12:18.347+00:002013-11-14T01:12:18.347+00:00This comment has been removed by the author.Tristan Pagehttps://www.blogger.com/profile/11108197278529150448noreply@blogger.comtag:blogger.com,1999:blog-1861777360544475411.post-79033908969975398672013-10-10T00:41:43.288+01:002013-10-10T00:41:43.288+01:00Hi everybody,
I am undergoing the Mackenzie method...Hi everybody,<br />I am undergoing the Mackenzie method physio treatments..it is supposed to get rid of my cervical herniations. I am going for 1-2 years and I think it will work. When I am done I will let everyone know if it worked for me..i think it will....good luck everybody.,,,i am going twice a week....byeAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1861777360544475411.post-46357619896999986912013-09-22T15:04:18.694+01:002013-09-22T15:04:18.694+01:00Hello Again,
I have noticed that there are about 2...Hello Again,<br />I have noticed that there are about 20 ways to adjust the upper cervical, two of which are the blair method and the nucca method. The problem I am having with nucca is all the images..have already had 8 images this year..radiation but may still try nucca..so it seems apparent that an upper cervical adjustment is causing the occipital neuralgia and so beta blockers or abulations would be temporary solutions. However adjustments are more pro-active and ..well, gulp...so if anyone out there has a preferred technique..it is upper cervical adjustments..wiki gives the list..i am going to do one of these but I am hoping someone answers my blog about what method they believe in so I can decide myself..i plan to read about each of them before I make my decision and then I will post my results..i may get my adjustment as late as feb....nucca is pricey in my home towm..7-9 adjustments and 350. per...so hope all of this research works..knock onAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1861777360544475411.post-69241589730808002332013-09-18T23:57:13.529+01:002013-09-18T23:57:13.529+01:00Hi Everybody,
I have occipital neuralgia. I have ...Hi Everybody,<br />I have occipital neuralgia. I have had it since May 31, 2013. My goal is to have it gone by May 31, 2015...and I hope that we can all get over it. So, what has worked with me is normal stuff but some people might not know it so here goes: magnesium citrate powder mixed with hot water dissolved and you can mix some juice with this for flavor...don't use more than 1-2 teaspoons..it is over the counter..it is called Calm. This is how I sleep. You lose a bit of balance during the night..hod on to the wall...no big deal right! Second, ice packs work for me on the base of the skull. Put in a cotton pillowcase piece like an envelope and hop around neck with a long strip of bed sheet..not so embarrassing a look at home. Third, the blair technique is one that the physical therapist could use ..it may be your C1 vertebrae that needs adjusting. Rob someone has a success story google this and he got cured from a therapist which manipulated him whe had 25 years experience...well, I have ON plus 2 herniated discs..the latter as mentioned I will try the Mackenzie technique..i will keep you posted..i am a lady middle-aged if that helps follow me and I will help everyone..we can do this ..knock onAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1861777360544475411.post-84542370474483028432013-09-18T01:37:50.270+01:002013-09-18T01:37:50.270+01:00I had an accident..heavy object swung and hit me o...I had an accident..heavy object swung and hit me on the top of the head. It herniated 2 of my neck discs and gave me occipital neuralgia. I am seeing a therapist. The main problem I am having is that I don't know how much of the pain is from the herniations and how much from the neuralgia. I try to swim a bit and while during I don't feel too bad...afterwards, I suffer so much that it makes me feel like I am making things worse...but how could I be..i go twice a week and want to up it to 15 minutes 3 times a week because of ..it is exercise..it makes me feel normal..arms hert and hhands...so I ordered mackenzies book heal our own neck and I am going to try to get rid of the neuralgia and then I will write a book to healp others..only thing is that I don't know if it will get better..yet after back surgery my back nerves there got better. I will be seeing a neurologist on Oct. 28..will keep everyone posted. I hope everyone keeps staying positive ..we can help each other..we will come up with a solution everybody...knock onAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1861777360544475411.post-78216583073866587612013-08-16T13:35:08.524+01:002013-08-16T13:35:08.524+01:00This blog site is pretty good! How was it made . I...This blog site is pretty good! How was it made . I view something genuinely interesting about your site so I saved to my bookmarks . You can visit my site. <br /><a href="http://www.backspasmadvice.com/" rel="nofollow"> treatment for lower back muscle spasmslower back pain spasms treatment</a><br />Anonymoushttps://www.blogger.com/profile/03150282509486176469noreply@blogger.com